ࡱ> ~[ bjbj mΐΐ`GO< 1&1&///D00001 0`T2Z3p_4_4_4;??x$VQ/TA:;"TATA1&1&_4_4ZEEETA1&_4._4ETAEEb+t3,Rs/^ _40A 0BV00`"B>""/Ƕg@"@E@@g@g@g@8Ejg@g@g@`TATATATA"g@g@g@g@g@g@g@g@g@ $:  ONS-HES Linked Mortality Data HES Data Request Service Application Form Service Levels 2 and 3: Bespoke Anonymised/Approved Extracts Appendices A1-A3: ONS-HES Linked Data Introduction This document contains Appendices A1-A3 of the HES Data Request Service Application Form. You can find additional copies of this document, and other documents relating to the Data Request Service, in the  HYPERLINK "http://172.20.1.134/Ease/servlet/ContentServer?siteID=1937&categoryID=468" Request a tailor-made report area of the HESonline website [http://172.20.1.134/Ease/servlet/ContentServer?siteID=1937&categoryID=468]. This document contains three forms to complete: Appendix A1: Extract Specification Form Appendix A2: ONS Data Access Agreement Appendix A3: ONS Data Access form for additional users. All customers also need to complete Part 1 of the HES request pack. Those customers who require ONS-HES linked data for uses not directly related to managing the health service also need to seek approval from ONS using Appendix D. Both Part 1 and Appendix D can be obtained from the  HYPERLINK "https://www.hesonline.org.uk/Ease/servlet/ContentServer?siteID=1937&categoryID=257" Data request application forms area of the HESonline website [https://www.hesonline.org.uk/Ease/servlet/ContentServer?siteID=1937&categoryID=257]. See section 4.5 in the HES Extract Guide (on HESonline) for more details. The form in Appendix A1 is to establish the data years and ONS-HES linked mortality data fields required. Any other details should also be listed that may help in processing your application. If you have a previous extract of HES data with which you may want to use the HES-ONS linked mortality data, please provide the extract reference number in the appropriate field in Appendix A1 to ensure that the extract HESIDs you receive are compatible with your previous extract. The form in Appendix A2 contains the data access agreement solely for the HES/ONS linked data items you are requesting, for ONS to approve. You should specify the purposes for which the data are to be used and agree to the terms and conditions within this agreement by signing the declaration. The form in Appendix A3 is the ONS declaration of use. All individuals working with the data in the organisation specified in Appendices A1 and A2 should complete the form in Appendix A3, one form per person. Only those persons who have signed this form will be allowed to access the data supplied. Further guidance about these forms and how to request an extract from HES can be found in the HES Extract Guide on HESonline. The other application forms that you will need to request an extract from HES can be found as separate files on HESonline. Appendix A1: HES Extract Specification Form (ONS/HES linked data) (Please either type or write in black ink, as this form will be photocopied) Data year(s): Data is available for 1998 -2010*, by default only ONS records which match to the associated HES extract will be provided. Please give details below if you require the data to be filtered further by the year in which the death occurred or was registered. * 1. Deaths registered before Jan 2001 contain original underlying cause of death and cause of death mentions coded in ICD 9 2. Data for deaths registered since Jan 2010 is provisional Other details Data year details FORMTEXT        Requested fields please select  FORMCHECKBOX  For an explanation of the fields in this section, please refer to the field descriptions in the HYPERLINK "http://www.hesonline.nhs.uk/Ease/servlet/ContentServer?siteID=1937&categoryID=289"Mortality Data Dictionary [https://www.hesonline.org.uk/Ease/servlet/ContentServer?siteID=1937&categoryID=289]. ONS mortality data All fields selected here require ONS approval. Please complete the forms as required in Appendix A2 and A3.  FORMCHECKBOX Checked fields are provided for all extracts  FORMCHECKBOX  Extract HESID  FORMCHECKBOX  Date of death (dod)  FORMCHECKBOX  Date of registration (dor)  FORMCHECKBOX  Strategic Health Authority of usual residence of deceased (resstha)  FORMCHECKBOX  Primary Care Trust of usual residence of deceased (respct)  FORMCHECKBOX  Sex  FORMCHECKBOX  Communal establishment  FORMCHECKBOX  NHS indicator  FORMCHECKBOX  Original underlying cause of death (cause_of_death)  FORMCHECKBOX  Non-neonatal cause of death mentions (cause_of_death_non_neonatal)  FORMCHECKBOX  Match rank** Linkage derived field relating to match quality  FORMCHECKBOX  Death record used** indicates source of the linked death record, HES or ONS  FORMCHECKBOX  Subsequent activity** indicates whether the patient has had any HES activity after the date of death (Subsequent_activity) **For further information relating to match ranks, death record used and subsequent activity fields please refer to the  HYPERLINK "https://www.hesonline.org.uk/Ease/servlet/ContentServer?siteID=1937&categoryID=289" Mortality Data Dictionary [https://www.hesonline.org.uk/Ease/servlet/ContentServer?siteID=1937&categoryID=289]. Other details if you require any further filters to be applied to your data please provide details below: FORMTEXT        Previous extract number Please provide your previous HES extract number if you have one & & & & & & & & & & & & & & & (This will allow you to receive extract HESIDs which are compatible with your previous extract.) Appendix A2: ONS Data Access Agreement for ONS-HES linked data  EMBED MSPhotoEd.3  DATA ACCESS AGREEMENT - HES/ONS LINKAGE Agreement between the Office for National Statistics and Data required Monthly extracts plus an annual refresh from the death registration subset. Access Period The period of access under this agreement is one year, but this agreement can be renewed on an annual basis. Purpose for which the data are provided The HES/ONS Linkage data are supplied under the Statistics and Registration Service Act 2007 section 42(4) for the purpose of assisting the Secretary of State for Health, or the Welsh Ministers, in the performance of his, or their, functions in relation to the health service. The information will only be used for the purpose(s) set out below - please tick as appropriate: Needs Assessment Epidemiology Health impact assessment Small area statistics Monitoring of wider determinants of health Indicator development Monitoring of health improvement Target Setting Support for training and education in public health If during the year additional uses of the data are identified, these should be notified to ONS for agreement. Products and publications No contact will be made with any individual identified in the information supplied without the prior agreement of ONS. The information will not be released to any other individual(s) or organisation(s) not directly connected with the work specified in section 3 without the prior approval of ONS, except in the form of non-disclosive statistical tables or conclusions. All outputs resulting from access to these data must meet the guarantee contained in the Briefing Note: ONS policy on protecting confidentiality within birth and death statistics and the Code of Practice for Official Statistics. Minimum information needed The level of data required is proportionate to the stated purpose(s). All the data provided are required to achieve the purpose(s) specified in section 3. Matching or linking Linkage of the information supplied to any other non-NHS information relating to identifiable individuals will only be attempted for the purpose(s) specified in section 3 and with the prior agreement of ONS. Duplication Any intended duplication of the data will only be for the purpose(s) specified in section 3. No other unspecified and unauthorised duplication of the micro data may take place. Lawful use of the data Data will be processed in accordance with the Data Protection Act (1998). Access to these data will not breach any commitments made to respondents to protect the confidentiality of the data provided. 8.3. These data are released in accordance with the Statistics and Registration Service Act 2007 s42 (4) which states that the Board may, for the purpose of assisting the Secretary of State or the Welsh Ministers in the performance of his or their functions in relation to the health service, disclose to him or them any information referred to in section 42 subsection (2) (a - c): a) any information entered in any register kept under the Births and Deaths Registration Act 1953 (c.20); b) any other information received by the Registrar General in relation to any birth or death. The information will only be used for the purpose(s) specified in section 3 and its use will meet the criteria and principles established in the Briefing Note: ONS policy on protecting confidentiality within birth and death statistics and the Code of Practice for Official Statistics. The principles of the Freedom of Information Act apply and nothing provided in this agreement is confidential to the beneficiary or to ONS. Security of the data 9.1. Registration/Notification number registered with the Data Protection Act: Z................. 9.2. The Responsible Statistician will ensure that their staff, inclusive of any contractors, know, understand and guarantee to maintain the confidentiality requirements of each of their statistical resources and will ensure that anyone involved with the processing of the statistical resource is aware of the penalties of wrongful disclosure 9.3. The physical and technical security of the data will be maintained at all times. No disclosive information will be sent by fax or email (unless via GSI for a GSS customer) and, if posted, will be encrypted to approved standards (PGP or Private Crypto not zipped) to protect the data and despatched by Royal Mail Special Delivery service or by courier. 9.4. Hard copies of the data will be stored securely in a locked filing cabinet. Access to the micro data will be restricted to those named on the Data Access Agreement who guarantee to protect and safeguard the confidentiality of the data at all times. Access to data will be via restricted-access password protection. 9.5. The beneficiary of the data will ensure that access to the data, any copies made of the data and the information contained in them is limited solely to the person(s) who have signed this Agreement. All other individual(s) who will have access to the data must sign the short declaration of use. 9.6. The confidentiality of the data will be preserved in outputs and publications, as detailed in section 3. 9.7. The means of access to the data (such as passwords or pass-phrases) are to be kept secure and only disclosed by the Beneficiary to those individuals who have signed short declarations of use. 9.8. Micro data is to be stored on a secure network, with restricted access and no internet links, or on a stand-alone PC. The PC is to be password protected on boot-up. 9.9. Data will not be accessed at a private residence, nor via a laptop or other portable device. 9.10. Disclosive data must not be sent or taken out of the United Kingdom. 9.11. ONS reserves the right to conduct an on-site audit of the beneficiary's confidentiality and security procedures and practices for guaranteeing the security and confidentiality of the data covered by this agreement, or to require the report of such an audit. 9.11.1. For the purpose of conducting an audit, ONS reserves the right of entry to the premises where the data are stored and processed. 9.11.2. ONS may require the beneficiary to provide copies of any audits of these arrangements, conducted during the period of the agreement, including any audit implementation plans. 9.11.3. Where the data are to be destroyed at the end of the access period, ONS further reserves the right to attend or audit the destruction of the data. All Departments must: Destroy paper records containing protected personal data by incineration, pulping or shredding so that reconstruction is unlikely; and Dispose of electronic media that have been used for protected personal data through secure destruction, overwriting, erasure or degaussing. Breach and Dispute Procedures. 10.1 The Statistics and Registration Service Act 2007 requires that personal information must not be disclosed by any person who has received the personal information directly or indirectly from the ONS, unless directly authorised by the ONS. Disclosures of information that contravene section 39 of the Act will be an offence and may carry penalties, as specified in section 39(9). 10.2. The beneficiary agrees to report immediately to ONS instances of breach of any of the terms of this agreement 10.3. Any disputes arising between the providing and beneficiary organisations will be resolved initially between the principals to the agreement. Otherwise, outstanding issues will be referred to the National Statistician. 11. Approval The signatories believe this agreement is compliant with the statements of principle in the Code of Practice for Official Statistics (The Code) and the specific requirements of the Protocol for Data Access and Confidentiality (PDAC). Where this agreement may appear to contradict the statements of principle in the Code or the specific requirements of the PDAC, the Code and the PDAC take precedence, unless explicitly stated. 11.1. Beneficiary Organisation The responsible individual approves the terms of this Agreement and agrees to meet the requirements specified. I [will take responsibility/have appointed ...................................................................... to take responsibility] for ensuring that the conditions of this agreement are fully complied with. We will ensure that ONS is informed of the names of any person who has access to the records supplied in the monthly and annual extracts and that the named individuals have signed a declaration of use. The signature of the person agreeing to these conditions is appended. In the event that either of us ceases to have direct responsibility for these data within the organisation, a substitute ONS Data Access Agreement will be signed so as to have continued access to the data and/or any further data from ONS. Name (print) ................................................................................................ Email: Tel No. ............ Signature: ............................... Date:............................................. 11.2. Declaration of Responsibility I undertake to ensure that the data supplied by ONS and placed in my care by: ......................................................... is processed according to the above conditions. Position in the organisation: ........................................................................................................... Email: Tel No. .............. Name (print): ............................................................................................................................................. Signature: ........................................................................ Date: ................................. 11.3. ONS Approval The Responsible Data Custodian for the Office for National Statistics authorises the provision of access to the data to the beneficiary organisation under the terms specified in this Agreement Status in the organisation: ......................................................................................................... Name Signature: . Date: ........................................................................ PLEASE RETURN SIGNED COPY TO:  HYPERLINK "mailto:enquiries@nhsic.uk" enquiries@nhsic.uk  EMBED MSPhotoEd.3  Appendix A3: HES/ONS LINKAGE SHORT DECLARATION OF USE PLEASE NOTE: This form must be completed by ALL intended raw data users I have read the conditions under which the HES/ONS Linkage extracts are supplied by ONS. (The conditions are part of the main Data Access Agreement.) I understand that my use of the data must be consistent with the conditions of supply. I will inform the person responsible of any actions that risk breaching their compliance with the conditions. To Note: This data is now covered by the Statistics and Registration Service Act 2007 that requires that personal information must not be disclosed by any person who has received the personal information directly or indirectly from the ONS, unless directly authorised by the ONS. Disclosures of information that contravene section 39 of the Act will be an offence and may carry penalties, as specified in section 39(9). Organisation Name ................................... Position in Organisation......................................... Organisation Address.................................................................................................................... .......................................................................................................................................................... ............................................................................... Postcode........................................................ Telephone number................................................ Email . Address where data will be accessed. (if same as organisation address state as above.) .. . Postcode Telephone Number .. Email ... Name (print) ................. Signed . Date...............     hospital episode statistics: HES Data Request Service Application Form, Appendices A1-A3 https://www.hesonline.org.ukPublished March 2011 Page  PAGE 8 of  NUMPAGES 8 Copyright 2011, The Health and Social Care Information Centre. 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NHS_Info_Centre_for_web\S`T\S`T#" `P$( ^(  6 } "?6 ~ "?6  "?6  "?6  "?6  "?6  "?6  "?6  "?B S  ?IJop"K]!B"tBt}Bt]!B"t]!"t~t]!"tBtZt<Q1#u AppendixA _Toc212797310 _Toc213739806 _Toc116805801 _Toc117306928 _Toc117304994 _Toc117305084 _Toc117305448 _Toc117306929 _Toc117304996 _Toc117305086 _Toc117305450 _Toc117306931 _Toc117304998 _Toc117305088 _Toc117305452 _Toc117306933 _Toc117304999 _Toc117305089 _Toc117305453 _Toc117306934 _Hlt250988704 _Hlt250988705 _Toc212797313 _Toc213739809Check318Check317 _Toc212797314 _Toc213739810.. 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